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The New England Celiac Conference took place on Sunday, April 13, from 8:00 a.m. to 4:30 p.m. at Four Points by Sheraton in Norwood, MA.

The conference featured keynote speakers, vendors and workshops. Gluten-free breakfast and lunch was served.

 

 Keynote Speakers

Ciarán P. Kelly, MD

Medical director of the Celiac Center at Beth Israel Deaconess Medical Center

Alan Leichtner, MD

Director of the Celiac Disease Program at Children's Hospital Boston

Alessio Fasano, MD

Director of the Center for Celiac Research at MassGeneral Hospital

Click here to read more about the speaker topics. Click here to see the slides from Dr. Kelly's presentation.

 

 Celiac Screening

Adult family members were offered the opportunity to be screened for celiac disease as part of a BIDMC study. Click here for information about the screening.

 

Workshops

Celiac Conference attendees attended two of the following workshops:

Naturally Healing Foods by Chef Nadsa de Monteiro, owner of the Elephant Walk restaurant

Easter and Passover Desserts by Chef Oonagh Williams

How the Gluten Free Diet Affects Families with Gonzalo Bacigalupe, EdD, MPH and Jessica Edwards George, PhD

Newly Diagnosed taught by Laurie Higgins, MS, RD, LDN, CDE

Staying on Top of it All with Pam Cureton, RD, LDN, Melinda Dennis, MS, RD, LDN and Karen Warman MS, RD, LDN



Many thanks to those who attended the Celiac Community Celebration

The Celiac Program at Harvard Medical School and the Healthy Villi hosted an evening of champagne and music.

 

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The Celiac Community Celebration was held on Wednesday December 11th at the Isabella Stewart Gardner Museum. 

 

VIP Attendees enjoyed a  champagne reception and gluten free refreshments.

 

The concert featured beautiful music by pianist Cahill Smith and violinist Geoffrey Herd.

 

All proceeds will benefit celiac care, research and support of host organizations.


Dr. Alessio Fasano Has Moved to Boston, Strengthening Region's Celiac Research

The Center for Celiac Research (CFCR) moved to Mass General Hospital in Boston in January 2013. The CFCR will also partner with the Celiac Center at Beth Israel Deaconess Medical Center at Harvard Medical School.

altDr. Alessio Fasano (pictured at left) will continue to serve as Director of the CRCF. He will become the new Chief of the Division of Pediatric Gastroenterology and Nutrition and Director of the Mucosal Immunology and Biology Research Center. Dr. Fasano will see both pediatric and adult patients.

The CFCR has been providing care for patients and conducting research on celiac disease and gluten-related disorders at the University of Maryland in Baltimore for 20 years. A spokesperson said, "We believe the CRCR's move will allow us to accelerate our goal of finding an alternative treatment/cure for celiac disease and gluten-related disorders as we work in partnership with the Celiac Disease Center at Beth Israel Deaconess Medical Center."

For more information about the CFCR and their move to Boston, visit their website.


Beth Israel Deaconess Hosts Comprehensive Website On Nutritional Management of Celiac Disease

 

The Celiac Now website has added a Frequently Asked Questions section. The FAQ section catalogs over 50 questions and answers specific to celiac disease and non-celiac gluten sensitivity.

 

Celiac Center at Beth Israel Deaconess Medical Center in Boston hosts CeliacNow.org , a free, comprehensive website for the nutritional management of celiac disease.

 

The website was written by expert BIDMC Celiac Center clinicians and their colleagues, and edited by expert gastroenterologists and dietitians.

Celiac Now

Three levels of information are provided for each topic – from very basic to more advanced – to appeal to a variety of readers, including clinicians.

The website content includes “Key Points,” “Take-Home Messages,” graphics, handouts, quizzes, a glossary and other resources.

It is also meant for those with non-celiac gluten sensitivity.

 


Going Gluten-Free Is Only the First Step: Advice From a Nutritionist Who Knows

Melinda DennisSticking to the gluten-free diet is only the first step toward eating properly for people with celiac disease, says dietitian and nutritionist Melinda Dennis. In an interview, Melinda advises that whole grains and high-fiber foods are crucial to eating well, and that vitamin and mineral supplements also are likely to be part of a well-rounded regime. Melinda knows of what she speaks: besides her professional training, she herself has celiac disease.(Click for full story.)

Healthy Villi Accepts Online Payment

The next time you renew your Healthy Villi membership, sign up for a membership meeting, or make a donation, you will be able to do so online. That's because The Healthy Villi web site is on a new software platform that includes an electronic payment option. Use of the new capability is strictly optional. The new capability is intended for people who prefer to conduct business online, without inconveniencing anyone who prefers a more-traditional way of doing business, said Lee Graham, president of The Healthy Villi. (Click for full story.)

What's new?

Upcoming Events:

Readings from The Opposite of Loneliness, essays and stories by Marina Keegan, will take place on Wednesday April 30 at 7:00 p.m. at Wellesley Bookstore, Thursday May 1 at 7:00 p.m. at Brookline Booksmith and Friday May 2 at 7:00 p.m. at Harvard Bookstore. Click here to read a NY Times review of this bestseller.

Join Director of Clinical Research Daniel Leffler, MD, MS and Nutrition Coordinator Melinda Dennis, MS, RD, LDN, from the Celiac Center at Beth Israel Deaconess Medical Center for an hour long informal Q&A session on 5/1 at the Concord Small Group meeting. Bring your medical and nutritional questions!

Registration is now open for the Making Tracks for Celiacs NH 5K Run/Walk and vendor fair in Merrimack, NH on Saturday May 10, 2014.

Join us at any one of our monthly small group meetings across the Greater Boston area. See the Healthy Villi calendar for meeting dates.

A new small group meeting in East Greenwich, RI will begin on May 20 and meet on the third Tuesday of each month from 7:00-8:00 p.m. See flyer or calendar for more details.

A new small group meeting in Fall River now meets on the second Wednesday of the month from 7:00-8:00 p.m. See flyer or calendar for more details.

A new small group meeting in Providence takes place on the fourth Wednesday of the month from 7:00 p.m. to 8:00 p.m. See flyer or calendar for details.

Are you a 20 or 30-something Boston area celiac interested in joining others for a dinner out at a GF friendly restaurant? If so, email Ilana.

News:

The FDA has issued guidelines for gluten-free labeling. CDF has posted a list of facts about the GF labeling law here.

ImmusanT is looking for biopsy confirmed celiacs to participate in a clinical trial for a celiac disease vaccine in Newington, NH. Email if you are interested or would like more information.

BIDMC has ongoing research opportunities:

  1. 1. Can ALV-003 gluten degrading enzyme protect against accidental gluten exposure?
  2. 2. Free celiac testing for adult relatives of people with celiac disease!
  3. 3. What is celiac brain fog?
If you would like more information about participating, call (617) 667-8397 or email.

 

Attendees of the July 10 Newly Diagnosed Workshop meeting enjoyed delicious gluten free treats baked by Healthy Villi President Lee Graham. The brownie recipe may be found here, and the lemon square recipe is here.


Items of Interest:


Do you ever wonder if the food you're eating is truly gluten free?  Gluten Free Watchdog was established to bring GF testing data direct to the consumer.

  • 8-ounce boxes of Ian’s Wheat Free, Gluten Free Mac and No Cheese with a use-by date of 26Aug2011 and UPC code 7-49512-43670-8 (372 packages impacted)
  • 8-ounce boxes of Ian’s Wheat Free, Gluten Free French Bread Pizza with a use-by date of 28Aug2011 and UPC code 7-49512-91572-2 (120 packages impacted)
 
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